Snoops Family on the View - Daughter Cori has Lupus

Well this is just a quick post and I'm behind a few weeks, but I found this link to the View website from August 6th (their interview is the 2nd 2 segments):

http://abc.go.com/watch/the-view/SH559080/VD5579269/the-view-86

Although they didn't go into too much detail about the disease and what it can do, they brought up some great facts about upcoming medications, how difficult it is to diagnose, what it can do to young children, how it can take so long to diagnose and the frustration around that (especially for someone like Snoop Dogg's daughter - someone that may be considered "high priority") - it still took them a long time to diagnose her.

And hat's off to this amazing girl who looked just so stylish and great up there and her message is so promising!  Something that some of us lose sight of when we're older and juggling a lot of things in life.  In each of our stages in life I think this disease poses new challenges and although I consider the difficulties of paying the bills, going to work, finding time for a social life, spending time with family and my boyfriend, and trying to deal with this difficult - the youth that have it have to deal with medications, embarassing rashes, hair loss - something that is still difficult for us, but we can figure out - they have to deal with harassment from school friends, being too tired to play and maybe not really understanding.  I just think its great that they went on the show and spoke up about how it affected their lives and - if lupus could ever be a good thing - brought her family back together. 

Also notice snoop rockin the lupus wristbands!

Whether you fall...

So for all of you perfectionists out there like me...or just anyone really, having a chronic illness can be so depressing in the fact you may not be as good at things as you used to.  Personally, I was athletic, smart, a go getter, everything on top of the world with places to go and people to see.  I'm not giving all that up, but a huge chunk of my life is now devoted to chronic illness.  I can't do too much in terms of athletic activities unless it's planned or I know I'm going to hurt and adjust my schedule accordingly.  I personally feel stupid now - because i can't remember things, I space out, I get distracted, I dont understand as well and i can't find the words I'm looking for.  I won't go for a lot of positions because I simply can't be there all the time.  Thankfully I got my masters degree before the bigger issues started to kick in because hopefully that will grant me some leniency in looking for jobs in the future as far as time off (and not financial gain as originally planned).  But it is what it is - we have to take what we are given and run with it right?

So I'm obsessed with music and I've been looking for some uplifting songs and found one today by Tracey Bonham called "Whether you fall" - on youtube then downloaded it from itunes.  I love it -the theme/lyrics of the chorus - "whether you fall...means nothing at all. It's whether you get up".

Whether it's today, tomorrow, an hour from now...we're going to have our "downs" a lot more than other people...but we have to take responsibility for our "ups".  We're going to fall...who cares - we have to get up and keep on going to be happy...only we can make ourselves truly happy by going out and getting it...whatever that is.  Please go check out the song - I really think you all will relate and like it!  Let me know what you think!

p.s. Also check out "stronger woman" by Jewel...really great :)