So it's been a while since I've written. Summer was awkward because I spent most of it in bed. From a cold to the flu to bronchitis to what the thought was pneumonia to something causing my cartilage on my ribs to get inflamed...then just regular flares of fibro and IC. My pelvic pain and vulvar pain has really been flaring since the lupus has been acting up and I'm not sure why. And finally over the top lupus flares - I guess is what i found out they are. All of my joints and legs. I'm on steroids now so am guessing the pounds will come back with that.
In any case, enough complaining - my family is walking the lupus loop for me in my area this weekend and I've made some jewelry to sell there where my grandma will be manning a table with me so that will be exciting. Also, I was watching "Lie to Me" the other day and they mentioned a man who's wife had lupus. Its always attention grabbing when you hear it out there and think every little bit helps.
In any case, sorry so short...I'm on a very awkward schedule until these meds take affect and the fatigue has been overwhelming except at night of course when I'm in the most pain and wide awake! Hope you all are doing fantastic and flare free :)
Luus and Sleep: Focus on Increasing Restoration
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Any of you listen to or read Dr. Lisa Damour - parenting expert and teen
psychologist extraordinaire? I loved two of her best selling books,
*Untangled* ...
4 days ago